Posts

Showing posts from June, 2014

Clean Scan

Image
so yesterday was my MRI scan and we got the results back today. no new growth, the tumour cavity still looks a mess and has changed shape a bit which is the likely cause of the seizures. so all good news their. the anxiety of scan and results days takes it toll. i am exhausted now. in weirder news, i got a message on google + from a guy in america saying some lady was using my scans to gain attention and money. it had gone so far that even william shatner had retweeted her. i'm not really sure of the extent to all of this, and whether she really was sick or not. but its weird all the same. she had shaved her hair and borrowed pictures of chemo drugs from other blogs aswell. i've scrubbed out her name

Not such easy sailing.

sorry about my absence from the blogging world for the past two months.  Stuff has been happening but I just never got round to writing it down and now I guess I’ve forgotten most of it. I’ve been keeping up the general plan of action but it hasn’t gone as smoothly as I’d have liked. I’ve had a few minor seizures and a lot of myoclonic jerks and headaches in the past few weeks and similar feelings in my left leg to what I had pre-surgery. Obviously I’ve found this both disappointing and quite worrying. But reading other blogs has made me aware that symptoms’ coming back doesn’t necessarily mean the tumour has come back, although sometimes it does. Anyway, I have a scan on Monday to see what’s going on inside my brain, hopefully it’s just changing shape again. Also a fellow astrocytoma blogger made a post about studies showing that glutamine being the primary carbon source for astrocytoma growth. Glutamine is the primary amino acid in most foods containing protein. I was on the r